This weekend, Acorn has started asking for food!
Most tube-fed kids have a hard time with hunger cues. They're fed on a strict schedule to make sure they get the required amount of calories, in an appropriate amount of liquid volume, rather than being fed on demand. It's hard to re-learn that connection: I'm hungry, I get someone to realize I need to eat, I get fed, I stop feeling hungry.
Now, to be fair, he's mostly dragging people to the fridge and making them open it so he can get his milk himself. But still, it's a huge step for us. It means he recognizes hunger, and recognizes that eating (or drinking) makes it better.
And, of course, it means he knows where to find milk :)
We've been trying to get him to eat solid foods first today (well, most days) rather than filling up on milk. It's been mostly successful.
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From one michigan blogger to another! So glad I found your site, im following you now- follow me back! :)
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