Communication is Key

It's getting to be IEP (Individualized Education Plan) season around here again. I probably won't be posting all that much up front about it - this time around we have an advocate because of all the problems there have been in implementing Acorn's plan this past school year (which have spilled over into the summer session too). And Leaf's IEP is really only marginally better, though the constraints on Early Intervention suggest to me that there isn't as much room for improvement there.

One of our key concerns for both children, given their medical history, is communication.

Acorn says less than a dozen words - and many of those, you have to know him to understand.

We sign at home. Not fluent ASL, but something akin to SEE (signed exact English) - we sign the words we know while we're saying them. I counted last week - Acorn uses about 4 dozen signs consistently, another 3 dozen or so inconsistently (or they're newly demonstrated). Our guess is that he actually understands several hundred.

It's not hard to imagine that Leaf too will be fairly adept at signing, since we already sign with her and around her and expose her to it all the time.

Our school district has expressed concerns about this, because in the view of those we've worked with thus far, sign language of any sort is "non-functional" because other people can't understand it unless they know it. They would rather Acorn use a communication device - an electronic device that says things when you press buttons (or, as many of the newer ones are, an electronic touch pad with configurable screens where touching the images makes it say things).

They've supposedly used the low tech version of this -  PECS (Picture Exchange Communication Symbols) cards - in the classroom, but have only documented getting him to use one card thus far.

We really don't much care either way - we suspect that Acorn and Leaf will find their own mix of using any or all of the above, along with verbal speech, depending on the situation at hand, until such time as they're fluent enough in English to make it their primary (but maybe not only) communication mode.

This week we had a private evaluation for a communication device; the school is supposed to be starting their evaluation (finally) this week. I'm not sure what either evaluation will recommend (though I've heard that the school's will likely recommend one specific piece of equipment because that's who they're contracted with). But among the verbal suggestions from our evaluation last week was that we needed to work with Acorn on getting the idea that he can tell us what he wants by pressing buttons or pointing at pictures. And another was to use the same sorts of pictures to build him a schedule that he can look at and point to, in the vein of "do this next."

So...we've been playing with our own equipment and some free and low-cost communication apps for Android. I'm making our own set of PECS cards. I've spent a lot of time looking at how others use things like PECS with non-verbal children. There are foods and holidays and articles of clothing, toys and feelings and medical cards too - just about anything you can think of.

In a lot of cases, specific sets of cards are used in specific circumstances to help the child work through what they need to do. For example, a bedtime set might include taking a bath, putting on pajamas, brushing teeth, combing hair, washing face, going to the bathroom, saying prayers, and sleep. We saw one set of 4, with a specific type of communication device, that sang "Itsy Bitsy Spider" one line at a time as you pushed the buttons.

And that got me to thinking (yes, I do get all the way back around to being a Pagan parent here)....what sorts of cards would we have for a ritual? or for going to a festival? Could we do chants this way? Prayers? How would we describe what we're doing in a two inch by two inch square?

the EI saga continues

I sent Acorn's teacher a letter last week, detailing our concerns with her interactions with Acorn. We're waiting to see how things go now, but I'm still not sure she's really the right person to work with him, based on her experiences and way of approaching things.



She keeps asking how we know that he understands signs if he doesn't use them. By the same logic, do we expect that toddlers don't understand words they can't say yet? Then again, during the evaluation this past spring, she asked how we knew he was laughing if he made no sounds.  *sigh*

We finally got her to start signing with him, rather than trying to get him to only point at things (she's apparently got a lot of experience in teaching kids to use alternative communication devices, which is not what he needs, since Acorn is already trying to talk over the vent, and already signing). Right now, she wants us to document signs used and how he responds because she's just not convinced that the signs posted on his wall are signs he knows.

Parent-Teacher conferences are coming up soon, and I am insisting on getting her and the various therapists (including the speech therapist that can't see Acorn because he's too young) being there if I'm going to take the time to attend.

Playing catch-up

I was home sick yesterday, with a migraine triggered by a muscle spasm in my neck. How fun - NOT!

This morning, I'm back at work, saving the world from insanity - or at least, keeping things moving.

And after yesterday, this week I need to look up a new sign for Acorn - "BITE" - as in, no, Acorn, mommy's toes are not for biting. Mommy's knee isn't for biting either (and the fact that he got enough skin & jeans in his mouth for that to hurt says a lot).

There's another diaper giveaway post coming today too, so be on the lookout for it. I'm sure there are other giveaways I ought to play along with, but nothing lately has struck my fancy. The truth is, there's not much we really need, and we have more stuff than any one family righfully deserves, you know?